New month, new centile...

Yes, you read that right!
T is moving on up...
He got weighed again on Friday and according to the doc's scales and measurements he is now 13.5kg and 95.5cm tall.
That places him on the 5th centile for height and weight and gains of 500g and 0.5cm in the last month - doesn't sound like much and it's not the meteoric rises we had before but over the past nearly 3 months since his op he has gained 1.5kg and grown 1.5cm so that's significant.

Add in the fact that he's been quite sick and we've decreased his overnight feeds a little and it's all a good trend!

He's not really eating any more than he was pre op and I was in a bit of a funk about that in the last week or so but then I sat and thought a bit.

Amazing what can happen when you actually calm down and think...
He had 6 weeks on purees and in fact he had more like 8 as he slowly weaned off them.
He's only in the last 3 weeks or so managed to go most of the time without his solids getting stuck on the way down at least twice a day. When things got stuck it caused him a lot of pain so not really helping to learn that it's safe to eat now.
So he's really only had about 3 weeks where there hasn't been a frequent risk or experience of pain when he eats.

So we're in the food is fun mode and that's the most important lesson for him right now.

The dietician wanted us to decrease feeds from 1 litre overnight down to 800 mls overnight but as I said in my last posting he wound up washed out, exhausted and teary at 800 mls. He's not so bad at 850mls so I'm working on a total of 850mls in 24 hours. Some days he drinks 150 of that in 50 mls bits, some days he only drinks 50 mls. So I just deduct what he's drunk from his overnight total and feed him accordingly.
I'm not completely happy with his energy levels on 850mls - he spends a fair amount of his time "laxing" - his word for relaxing, which consists of cuddling down with a blanket, cuddly and dummy on the couch - but he's got to have the opportunity to try to get hungry and eat.

When the nurse weighed T he said that normally they like to see a gain of 1 kg over a month and T has only gained 450g in a month, but that he'd be happy with T's gains as he's such a busy kid.
I think it shows how there is a gap between the feed levels and his eating levels and required calorie levels but we've got to try and see what he can do on his own too.

But he's a changed child from pre-op and it was all so worth it!

In other news N is not doing so well - he's down a kg in the same month although he has grown - so not looking the best!
However we're hopeful that'll pick up a bit as we've seen T's paed for N and his growth and ADHD medication. She's changed everything around and he's now got something to help slow him down a bit at night as well as a total change of medication for during the day. This doesn't seem to supress his appetite anywhere near as much as the other did - he even ate breakfast 30 mins after taking it whereas on the other you had about 15 mins to try and cram something in!

So improved sleep (he's now out each night well before 10pm when it used to often be midnight) and better compliance - like actually stays IN BED, never mind in his room, and less appetite supression will hopefully result in better growth and weight gains for N!

T just had his birthday party this weekend but I'll post about that later in the week when I do a birthday update on that one just for him.

W just keeps on keeping on :-) He's growing like a weed and eating us out of house and home! I had to buy him new clothes recently as he was looking stupid in his ones - he's really shot up again in the last couple of weeks! He's doing a bit of the snotty pre-teens mixed with Asperger's makes life interesting, but he's doing nicely over all. Gives me hope for the other two that's for sure!

I'll post again later in the week for T's birthday!
Eleanor.