I am soooooo frustrated!
I had an inkling this would happen but it’s just so unbelievable!
T does not qualify for the feeding team.
I just wish instead of this fight I was just banging my head against a brick wall – because then I could stop!
I don’t even want to see this dietician later this month – unless someone can give us _real_, _practical_ advice on getting him to eat then it’s all going to be a total waste of time. The GP has said she only wants him weighed once a month – unless he starts to lose!
This is all such an impossible mess and no one seems to want to or be able to help. I just want him to eat properly and be sure he’s getting what he needs. Boosting calories is just a bandaid – but so long as he’s gaining no one seems to care _how_ he gets it.
4 comments:
I've been wracking my brains trying to find some sort of solution to your problem. Alex wasn't a big eater either but he did eat. AND, he didn't have reflux. I've been thinking back to the days when he was a toddler and what we did but basically what we did was to let him eat the things that he would. You don't have that problem.
I did have people tell me not to spoil him by making seperate meals but preemies will refuse to eat. They will not eat, even when hungry. The norm does not work for them. Our ped wanted to tube him but with his profound autism, he would have pulled it out. Oh,no she said, they stitch it in. Oh yes, I said, you don't know autism.
I do know that we are probably one of the few who, when reading nutrition lables, says "There is just NOT enough fat and calories in this." I am probably one of the few who applauds high fructose corn syrup.
If I have any type of brain storm, I'll let you know. But, I'm sure that you've covered every base that I would have. Know that we think about you.
Thanks twinsx2!
I remember when dealing with W that I'd spend hours in the supermarket reading labels to get the highest fat content I could!
It does help to know that others have been there or are there too with this - as I said to my mother the other day - I was off to cook a dinner no one would eat!
We will have to wait and see what the dietician can think off!
I'm so sorry for your frustration!
My 1515g 32-weeker is now the size of a 12-year-old, so I'm no help. But I sincerely hope someone comes to your rescue sooner rather than later!and
Thanks Di!
That's part of what's so frustrating with all of this - T was a 36 weeker, 2580g, no NICU time - in terms of the on-going, never ending feeding battle it's been going on since about 2 days old! Maybe if he HAD been in the NICU they might have noticed something...
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