You know how I posted about T being turned down by the feeding team but we were waiting to see the dietician from the team?
This long awaited appointment – been waiting 2 months already? He’s on Polycal which is supposed to be monitored by a dietican…
His feeding therapist, who has said she can’t really do anything for T, but suddenly said once he is seen by the dietician she can work out a plan for him…
The appointment was set for 30 Oct, and on the 24th we got a letter in the mail saying the appointment had been changed – to 23 DECEMBER!!
No reason, just a form letter.
So by deferring to the very end of December NOTHING will happen for T until Feb. He turns 4 at the end of April!!!
As P rightly said, since T isn’t straightforward, he’d expect that December appointment to be cancelled too.
T was referred to the dietician in August! He is basically formula dependent and at 12kg or about 26 lb at 3 ½ is seriously underweight. He jumped from 11.5kg to 12kg thanks to the Polycal but isn’t gaining any more and so is staying static again. He’s tired, tearful and lacking in stamina – which affects everyone in the family. He’s gained 500g all year. And we can’t even see a dietician with experience in specialised formulas/supplement
AAAAARRRRGGGGHHHHH! That's how you spell frustration!
2 comments:
El, I'm so sorry to hear of your latest frustration. Is there any way to get private insurance and go to a better hospital/clinic/doctor? I hope it doesn't come down to an emergency before you all get some help!!
Thanks Di.
We have private medical insurance but basically that's great for adults here in NZ - almost everything to do with Child Health is public system all the way so private insurance doesn't help much.
He had a private dietician but she doesn't have the experience in the specialised formulas/supplements that T needs.
We've written to the paed with our concerns and we see her this month so hopefully I'll be able to post with some good news on the T front for a change!
Post a Comment