I'm just tired of this all...

We did our 2 weekly weigh in with the GP on Friday - the good news is it looks like T might have gained 300-400g.

The proviso is that it was a different time of the day and it's still under 12kg but higher than it was. He was higher than 11.5 2 weeks before than so he's at least a fraction up now for a month.

We discussed his retching, spilling, reluctance to eat and his spitting out food - and then he spat out his highly desired jelly beans, all over her floor...
She agreed that it is NOT an attention seeking behaviour.

We're now trying to prop Thomas up on pillows in his bed - in the hopes he'll sleep better and STAY in his own bed. We've noticed that he comes to our bed, settles himself virtually upright and promptly goes to sleep, only to wake once he slips down again.

Saturday I gave him his omeprazole (aka pizza box medicine!) and his customary sweet as a reward for taking it - and he spat out a part chewed jelly dinosaur. I can't even seem to feed this child sweets any more.

He had his hair cut on Friday afternoon and the hairdresser and I were chatting and we were talking about food, eating etc and her comment was I just had to try harder to get him off bottles and eating properly. Yeah, and if it were that easy do you not think I'd have achieved this by now??

I went to work on Sat morning, after T had spat out his dino, almost in tears. I nearly popped in to see the hairdresser to tell her of the morning's events. Yeah, sure, he'll eat if I just try harder - but I can't even get him to eat a sweet any more!!
I came home after work to discover that P had had lots of visitors who had all been coffeed, caked - but the younger two actually eat? Um, no. The initial refusal they give to food had been accepted as the final word on the matter!
Needless to say a detailed description of how hard you actually have to work to get the younger two to eat was delivered - and maybe he has a little understanding of what I actually do with my day!

Anyway, the GP has also found out what I have about the Feeding Team and so she's going to do an urgent referral to them for T. We have to chuck everything we can possibly think of into the referral in the hopes they will deem him meeting the criteria and be 'allowed' in. If they decide he doesn't I don't know what we do to get him to learn to eat!
It's nearly October now, it'll take a couple of months probably before he gets to see anyone so nothing'll happen on that front until next year thanks to the big summer shutdown.

But I despair - how are we going to persuade him to eat when he's maxed out the meds and clearly still symptomatic? I wish we hadn't opted out of surgery - that was really the wrong decision and I was uneasy about it at the time. Never mind - at least by the time we see the paed, get back to the surgeon etc he will have well and truely done his suggested 6 months on the omeprazole and so hopefully the surgeon will be happier to work on him.
I just can't see any end in sight with this - and after battling eating problems with W, N and now T we've been fighting this monster for over 10 years - and I'm battle weary.
I don't know how this is going to end - but I'm NOT looking forward to meeting this dietician. Never mind, I've got to hope for the best...