Another day, another med...

Sums it up really.
N saw the paed yesterday due to his eating etc.
She's happy enough with the static weight - at least he hasn't lost anything - one of my least favourite phrases around!

I have, however, got a bit of an answer to one of my concerns - that he was on the 20th centile pre nissen and is now hanging, just to the 1st - 3rd for both height and weight. She says he's seen a number of kids do this and they do a rapid growth and catch up around the age of 10 and keep growing until 19 or so instead of the standard 17. Looking at W's recent and continuing metoric surge in height which started about a year ago, he'd fit that pattern.
BUT - you do have to put in the calories to do that growth with.

We discussed the possibility of going back to 4 high cal drinks a day but I really feel that'd be a backwards step. He'll never feel hungry enough to eat if he's filling up on 800mls of high cal formula a day. So we're staying on the 2 drinks a day and adding meds instead.

As he's taking for ever to kick infections, developing mouth ulcers which take for ever to heal, hair thinning and becoming brittle, she's put him on a multi vitamin to help with that. He will also start taking an old school antihistamine called Periactin. This isn't because of allergies but because it has a side effect of increasing appetite so we'll see if we can force him into eating. It may or may not work, there are other appetite inducing meds we can try but this one's been around for a large number of years so has a good safety profile.
It may work for a bit and then wear off - we'll just have to wait and see.

In my research on the med last night I did discover that it is going to be dropped from our drug funding schedule in September so even if it works we'll have to find a substitute by then.
I also took in his script for his high cal drink and it dawned on me last night that if the drug funding body does as it has announced it wants to do, then this will be his last script. They want to reduce the funding which will mean we can't afford it any more and they want to do that from 1 July. Each of N's scripts for it last for 3 month's worth so we're about to collect a March - April lot, then an April - May lot, then a May - June lot.
Then he's got to go onto a powdered version which I'll have to mix up and give him. We've tried that one before and I know he hates the taste of the re-constituted drink.
So one support will be kicked out then and then in 2 months after that the appetite stimulant will be unfunded too.

Going to be interesting times in the next 5 months...

And in the mean time I have a child on 5 separate prescription items - a pill for every season...