Sunday, May 24, 2009

So much to do...so little time...

I haven't been back here in a while - so what's happened?
T is 4!! Good Lord how did THAT happen??
N's gained weight, lost it and gained it again - and so the yo yo continues
W just keeps on trucking! The soccer season has started with a vengeance - won several games lost one big time and this weekend's one was a beautiful illustration why artificial turf and Wellington wind really don't mix! The wind would get to the ball before they did and blow it in the other direction...still, they won!

This week is appointment roundup - we did the GP for my preferred, controlled weights last week - so Tuesday is the community nurse, Wednesday N gets his new glasses (finally), Thursday is the Dietician for T and Friday is the Speech Therapist for T!

So I'm sure I'll update at some stage in all that.

T isn't doing so well any more. His eating hasn't really improved - I went back over his old food diary entries pre-op and his 'bad' days were worse than his 'bad' days now, but his 'good' days pre-op were better than his 'good' days now.
To add to it all he hasn't gained any weight or grown over the past month, after all his meteoric rises post op!
So I can't see the tube feeds being weaned down any lower, nor would we want to as he's been sickish repeatedly, tired, out of sorts etc and as it's winter I can't see that improving too much.
Just in the last 6 weeks he's had a bout of croup, a cold, an infection round his tube site and then another cold - so it's not been the easiest for him to gain either.

Anyway - I need to change his feed over and get to bed so I'll update later.

1 comment:

Brendan said...

HI Eleanor, Brendan Torley ( choir / italy remember me ). Thought I'd drop by and see the blog.
BTW I'm interested to note you 1936 years old ( really you don't look a day over 1200 )possibly your profile needs a tweak.
Cheers
Brendan