And the dance becomes even more 'fun'!

You know how I posted about T being turned down by the feeding team but we were waiting to see the dietician from the team?

This long awaited appointment – been waiting 2 months already? He’s on Polycal which is supposed to be monitored by a dietican…

His feeding therapist, who has said she can’t really do anything for T, but suddenly said once he is seen by the dietician she can work out a plan for him…

The appointment was set for 30 Oct, and on the 24^th we got a letter in the mail saying the appointment had been changed – to 23 DECEMBER!!

No reason, just a form letter.

Now, here in New Zealand, this is a total disaster. We don’t just have 10 days off over the Christmas/New Year period. It’s the summer holidays from schools etc and most people take their 3-4 weeks annual leave over this time. Government departments etc basically shut down over January. The hospitals only really do urgent stuff for about 3 weeks over this time. Outpatient clinics are at a total minimum.

So by deferring to the very end of December NOTHING will happen for T until Feb. He turns 4 at the end of April!!!

As P rightly said, since T isn’t straightforward, he’d expect that December appointment to be cancelled too.

T was referred to the dietician in August! He is basically formula dependent and at 12kg or about 26 lb at 3 ½ is seriously underweight. He jumped from 11.5kg to 12kg thanks to the Polycal but isn’t gaining any more and so is staying static again. He’s tired, tearful and lacking in stamina – which affects everyone in the family. He’s gained 500g all year. And we can’t even see a dietician with experience in specialised formulas/supplements etc!

AAAAARRRRGGGGHHHHH! That's how you spell frustration!