Putting your best foot forward!

The saga with P's foot continues onward...
The MRI has shown considerable inflamation and so we're doing the same dance with him that we have been doing with T - same meds...again...even though it didn't work the first time.

He's back on anti-inflamatories, the ones which made him dopey - because he didn't think to tell the doc that - for some considerable time.

It's the same old, same old - if it's not improving in x months then come back, it's going to be a long term problem, slow healing etc.

At least with his orthotic in place now - a mission in it's own right, over a week and a half and the wrong sent out 3 times - he's much more comfortable and happier.
But none of these 'solutions' explain the rash he gets coming up and down unpredictably, or the general feeling of unwellness which keeps occuring.
Gee, I LOVE the medical limbo - and now I can do it in two arenas at the same time!!!

And as for T, he really seems to love his current pothole. Yes, he's happy, yes he's energetic, yes he's doing what he needs to do - oh, yeah, except EAT!
His eating went down badly over his run of bugs and it just isn't recovering. He isn't eating much at all, he isn't gaining, and since I'm fighting the bottle battle all over again he's not drinking much!

But what worries me, and I'm definately going to raise with the GP is his periodic complaints of a sore tummy. I have tried to tell him he must be hungry and to get him to eat something but it doesn't seem to help him. The other night he doubled over saying "Tummy hurts!" He was gasping/panting and had tears in his eyes. After I'd comforted him and he felt better he decided, not unreasonably, that that was it for dinner!
Whenever you ask where his sore tummy is he always points to where you'd expect reflux pain.

As if that wasn't bad enough he's just taken to spitting out chewed up food instead of swallowing it! He's done it 4 times over 4 meals now - he shoves probably 2-3 mouthfuls in at once, gaggs and then spits it out on the floor - or fishes it out and throws it on the floor.

I haven't heard back from our GP about where we're at with a feeding team kind of approach, we don't see the dietician until 30 Oct or the paed until 27 Nov.
My feeling is we get him checked out by the GP with these 'new' reflux symptoms, we can't medicate him any more than he already is. So then we wait until we see the dietician - just going in circles until then. There's no point in bringing the paed appointment forward because we need time to try out the dietician's suggestions - I hope she has some!
And we really question where we're going to when we see the paed and possibly go back to the surgeon. The surgeon said to try the omeprazole for 6 months - we're up to 7 weeks now, by Nov we'll be up to about 4 months. Thanks to Christmas and the summer bringing everything to a screaming halt we'll be well over the 6 months by the time things return to normal and can possibly do surgery. The poor kid will be 4 in April - enough's enough!!

Gee, the medical limbo's the most exciting game ever! I'm soooo glad I've been given the chance to learn to do it so well!