Finally some progress!

The on going saga of T seems to be finally coming to a head.
I made a GP appointment for Friday to try and further co-ordinate and push things along for him - as I hadn't heard back about the new zantac, speech therapy, or from the surgeon.

So, typically as I was leaving the house we got the hospital admission forms in the post!

T is due in hospital for a gastroscope and biopsy this Thursday. So of course there's been a real flurry of activity to organize child care for the 6 to 8 hours he'll be at the hospital. I thought the point in going private was so we didn't get things suddenly dumped on us! But at least it's progress!

The GP called the dietitian and after they talked, she came to the conclusion that T needs a feeding tube - whether or not it's reflux. That now makes it a definite.

I don't want to do this - but something has to change. We've fought this food battle for nearly 3 years and T has won. I never thought I'd say that, but that's the way it is.

So the GP is now getting the paed on board - and more importantly up to date! So she can also direct the surgeon to go ahead with planning a peg gastrostomy tube.

The GP also chased up where we were at with the speech therapists who deal with feeding issues - and discovered that they've lost the referral! So she was going to sort it out and re-fax it on Friday, and she said that in light of T's worsening eating she'd class him as urgent! I don't know if I like that idea but if it's what it takes then we'll do it I guess.

So right now I'm trying to get my head around the fact that T is having his first general anaesthetic on Thursday. They like parents to go with the child while they give the anaesthetic - and I did that with N when he had his surgery last year. He fought the anaesthetic as they were giving it - suddenly thought of something he wanted to say and tried to pull the mask off!
It was just horrible - and awful to see the fight suddenly end.
But I'll just have to be strong - this has to be done right as he'll have another shortly and I don't want him scared because of my reaction this time round.

I'll keep people posted!
Eleanor.